So I probably should be studying for Greek, seeing as I missed the last class and I have to make up two quizzes tomorrow. But I have to brag on my beautiful wife and baby boy! If you can’t tell by the pics that are on Facebook or here, then I will just tell you that I am SOOO proud of both of them!
Ellen is now completely off of IV’s and is now on some pain meds that she is taking by mouth. Her pain that was the start off all of this, the one coming from her Adrenal Gland, is almost gone. Ellen says that she still can tell that it is there, but it is dramatically different than it was a week ago. In the past 24 hours, Ellen has gone from being on so many meds, and in so much pain that she could not get out of bed unless I (or the nurse) basically picked her up out owith out any of her own power, AND NOW tonight, she is not on any IV meds, and walked all the way back from the NICU (and its not just around the corner)!! As long as things keep going this well (and the doctors don’t see any reason why the wouldn’t) then Ellen should be going home on Tuesday. Although this will be GREAT, it does kind of make us sad that we will not be right down the hall from our baby boy Judah.
Speaking of Judah, he is doing great too! He is in the NICU and will be there for a few weeks. His nurses have been great and let us hold him when ever we want as long as they are not doing something to him. Currently, as Ellen said last night, Judah is on CPAP and has a PICC-Line. The nurses and doctors are hoping that he can come off of CPAP in the next few days, and in the meantime the PICC-Line is delivering all of his nutrients to him.
As I was holding him tonight, looking at his cute little face and feeling his delicate little fingers wrapped around my index finger, I recalled a familiar conversation that we have had several times with our awesome friends here, Megan and Joe Fraser. Joe has said several times that he cannot imagine being able to love another child as much as he loves his daughter, Sophie Grace. As Judah’s eyes blinked open, and I could see his dark little eyes looking back at me, I finally realized the feeling that Joe had. In that moment I could not fathom loving anybody as much as I love Ellen and Judah. It is crazy to think that the love I have for Judah does not even begin to measure up to the love that the Father has for everyone of us!
As I continued to hold him (Ellen held him this morning for about an hour and a half, so it was my turn tonight!) Ellen and I discussed Judah’s future. I asked her, “Isn’t it crazy to think about what he will look like a year from now, and then a year after that, and then when he is 10…” Judah loves to be held, FACT! Every time that Ellen or I hold him, all of his stats improve! The good part about that is we love holding him too!
Quickly, the syndrome that the Neonatologist thinks that he has is Holt-Oram Syndrome, and as Ellen said it only affects his hands and heart. We should get an actual diagnosis in the next couple days when we meet with the Pediatric Geneticist (probably about the 20th different doc.).
Before I let the nurse take Judah from my arms and put him back in the isolette, I couldn’t help but think of how Blessed I am. I am so blessed to have a son and wife that are so brave. I am so blessed to have so many people that care as much as you all do, to faithfully pray and be willing to do anything for us to help us in this time. Ellen and I are so blessed to have the family and friends that we do. We are so blessed that Ellen works with amazing people that are at the top of their field. There has not been a moment in the past week where we doubted their skills or ability to make sure that our family was getting the absolute best care possible. And we acknowledge and are thankful that all of these blessings come from God!
Here are a few more pics of Judah from tonight! In one you can see him holding my fingers and in another you can see his full head of dark hair!
- Judah holding my hand